Tag Archives: chronic illness

Elephant From the Upside Down Theory

Bear with me for a bit of silliness  😉 Sometimes I feel cheated when I read the Spoon Theory which many people with chronic illness seem to love so much.  I’m not of fan of the spoon theory.  I think … Continue reading

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Eduardo

Preface: This is one of many memories of living at National Jewish Hospital for three months as a kid back in the 70’s. It was an inpatient program for kids with severe intractable asthma and/or lung disease. We came from … Continue reading

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On Blogging and Empathy

I’ve been dealing with bronchitis on top of my PF, so not feeling very motivated to do much of anything lately, including write in this blog. I started this blog mainly just for me, somewhere to write when I felt … Continue reading

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My pack

I told you from the beginning I love dogs. I really didn’t mean to end up with six. I thought three would be my limit, but then we rescued two, and adopted one pup who needed a home. I had … Continue reading

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People leave

People leave when you are chronically seriously ill.   It’s a horrible reality, but I’ve talked with many PF patients,  and unfortunately,  so many of them have similar stories.  People they loved, trusted, and relied on disappear when the going … Continue reading

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Either Way : My long relationship with Guster songs

Into the veins, Enters the medicine Stinging, upheaving complacence gone. The cycle begins again. Bleeding with apathy, In this maze I’m too far down. Discarded by confidants, Gasping, I see I’m all alone, trying so hard not to drown. I … Continue reading

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A Bit of Background

. So that is me, looking a bit Hannibal Lecter-ish wearing my full faced BiPAP mask.  I have had breathing issues my whole life.  As a kid, I had severe asthma and allergies, and medication only made it worse.  I was … Continue reading

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